Temasek Foundation Cares – Paediatrics Hospice Care
First paediatrics hospice care programme in Singapore to provide person-centred care for children with life-limiting medical conditions and their caregivers
Partner: Assisi Hospice
Children with life-limiting medical conditions like cancer, blood disorders, congenital malformations or organ failures which require regular access to specialised paediatric care and equipment can now turn to an inpatient care service in the first paediatrics hospice care programme instead of staying in an acute care institution.
The three-year pilot programme will address the challenges arising from the broad spectrum of illnesses which require different medical and nursing expertise, as well as the needs of the patient, his family and siblings through a multi-disciplinary team trained in paediatrics care. There will also be a higher nurse-to-patient ratio due to the high care needs of these children.
The dedicated paediatric ward is designed with more space in each single room to accommodate overnight stays for parents. The ward space also includes a playroom and a playground to encourage bonding between siblings. These facility features enable young patients and their caregivers to be cared for holistically as a family unit in a home-like environment.
Under the new care model, families of these children will also receive structured caregiver and bereavement support. The stepped-up support will include caregiver respite services, caregiver burden assessment and education.
"She's more responsive and cooperative. I can see from her expressions. She is happier, she laughs more. That makes me happy. Life is different now. Here, I get help, and she gets to play with others. She also gets to listen to music. These are all things that she loves. She's very well taken care of; the nurses are very meticulous."
~ Madam Sally Lim, mother of 17-year-old Kelly Ho, who is diagnosed with Gaucher disease and cared for at the paediatrics hospice ward